WAAAHOOOO!!!!
We had a doctor's appointment for Bug Boy on Friday. We saw a cardiologist, who did a complete work-up on Bug Boy. He could find no abnormalities, everything in his little ticker is working fine! YIPPEEE! Since he has a seizure disorder and the metabolic condition (which manifests itself in lactic acid) they will see him routinely for the next few years, just to be on the safe side. But he has no murmur, no holes, no abnormalities. His heart is FINE!!!
That is good news, except that they really do not know the reason for his extreme exhaustion. They have tested for everything from leukemia to Muscular Dystrophy. They've done muscle tests, EEGs, MRIs, xrays and still cannot come up with a reason. Since he eats a very good diet (much better than a typical child!), takes a multivitamin and drinks plenty of water there is no good reason for the muscle cramps and exhaustion. They are currently blaming it on this metabolic thing and we still do not have a word for that, yet. We see genetics soon. And Bugaboo may get referred to cardiology just to be on the safe side. Somehow I think he will be less cooperative during the EKG and Eckocardiogram than Bug Boy was!
Want more good news? After being at duPont 6-8 times a month for the past year and a half, we have NO APPOINTMENTS SCHEDULED until late April! WAAHHHOOOOO!!!!! Except for their yearly checkups at the pediatrician (which is laughable, since we are there several times a month due to colds and infections) we are home free for a few weeks. Ahhhh, what a nice feeling!
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